Thursday, February 28, 2008

Perspective

I wanted to write a little bit to put some perspective on what I have been through. First, I would not have been able to do what I did without the man standing to my left in the picture- my dad. My dad took a six month leave of absence from work just to come stay with me in Tucson and take care of me. I initially underestimated how hard all this would be and thought that it was really nice of him, but that he might not have much caretaking work. Boy was I wrong. There is no way I would have done this without a caretaker as loving, compassionate, and dedicated as my dad. He has put his life on hold solely for the purpose of constantly taking care of my every need. For this I am eternally grateful, and I know this would have been much tougher without him.

My second caretaker is a woman who set a record for amount of throw up cleaned up in a two week period. That is Jen. She tirelessly researched everything to do with head and neck cancer, and was beyond prepared to tell me what was normal and what people were doing whenever I came across a problem. Beyond that she is responsible for me having such high spirits through the whole ordeal. Any time I got to see her was a time for me to just be happy. For Valentine's day, she decorated my room, and almost everyday throughout the whole treatment she did at least something as simple as leaving me a note. Since she learned so much about the whole process she was an invaluable resource for keeping me doing what I needed to be doing.

My ultimate perspective on the whole thing is that I had to go through something very unfortunate, but it was simply something that I had to do. Any of you would have done the same thing. When you are faced with this situation, there is just no other option besides to fight. And I fought a miserable, cruel fight. I don't and never have viewed my situation as tragic. There are much worse things that can happen to one in life. As far as bad things go, I got off relatively easy. I will have to sacrifice through changing my lifestyle for the next few years, but for other tragedies the recovery is not that easy.

I hope my sister doesn't mind me bringing her up, but she is my true hero and source of inspiration, because she went through a legitimate tragedy. Her journey was harder than mine, and I would go through my treatment forever if it meant having to avoid what she has been through. And yet, her situation never got the kind of press someone going through cancer gets. I don't even know if she got as much support as I got. What I have realized through all this is to pay attention to all suffering, not just the ones that are obvious. I hope to keep forever, the sensitivity that this terrible disease has given me.

Steve

18 comments:

Senor Groseta said...

Incredible perspective- very Candide. Your humility puts everything in perspective for me and all my trivial complaints. It also brings a smile to my face to see you finished and Tom by your side. You guys are awesome.
Thanks for sharing your humor and pain and insights throughout the process- I can't wait to see you.

GoldenAngelsWorks said...

You are truly a very remarkable young man. Your parents and Jen as well as all the family and friends you have are truly blessed. It is amazing sometimes when you go through something and find out just how loved you really are. It is those that give their unconditional love for us that are the real gems and treasures in life. May you always have them in your life. God has surely blessed you and I pray he continues to bless you and your family.

Anonymous said...

Hey Baby,

I am very proud of my big brother, but not at all surprised. He had the best mentors on parenting with Poppie and Moochie, and I admire him so...

There is also you Mom, when she is Tucson, she hates to see your pain, when she's in Phoenix, she misses you and your Dad so much. She has always been an inspiration for me, and I've become her avid supporter.

You're so right about Jen, I can't even think of a word to describe what a strong, smart, loving, caring, beautiful person she is...she is truly amazing.

Doppie and you have always been so close, and yet after this you've probably are even closer...the same with Breadie.

You have brought so many wonderful people together through this website. I wish that one day we could all celebrate and meet face to face.

My heart was so much lighter today...Ted said that he thought yours was as well. One day at a time baby.....I am so proud of you and your team.

Tom and Jean, I love you so much and I am so proud of you and your family.

Love your forever...

Aunt Lynnie

Adrian said...

I saved a poem for this day and reading your perspectives I hope you will enjoy it:

Kindness
Naomi Shihab Nye

Before you know what kindness really is
you must lose things,
feel the future dissolve in a moment
like salt in a weakened broth.
What you held in your hand,
what you counted and carefully saved,
all this must go so you know
how desolate the landscape can be
between the regions of kindness.
How you ride and ride
thinking the bus will never stop,
the passengers eating maize and chicken
will stare out the window forever.

Before you learn the tender gravity of kindness,
you must travel where the Indian in a white poncho
lies dead by the side of the road.
You must see how this could be you,
how he too was someone
who journeyed through the night with plans
and the simple breath that kept him alive.

Before you know kindness as the deepest thing inside,
You must know sorrow as the other deepest thing.
You must wake up with sorrow.
You must speak to it till your voice
catches the thread of all sorrows
and you see the size of the cloth.

Then it is only kindness that makes sense anymore,
only kindness that ties your shoes
and sends you out into the day to mail letters and purchase bread,
only kindness that raises its head
from the crowd of the world to say
It is I you have been looking for,
and then goes with you everywhere
like a shadow or a friend.

What a journey, my friend! Thanks for letting me be part of it. I hope I learnt a lot. I enjoyed all your posts, especially this one.

annabelle said...

Adrian, what a great poem. Thanks for sharing it with us.

Aunt Mary said...

T,
Pride at this point is a given. It has been a learning process for all. We have learned that the support of family is a trememdous catalyst towards positive thinking. We have learned that support includes many different roles. Your dad has show us perserverance in light of many dark moments. Jen has been by your side ever so cheerful inspite of her demanding professional schedule, your sister made every effort possible to make the journey from Flagstaff to Tucson inspite,too, of her graduate studies. And your little brother has managed to maintain close to a perfect GPA and be member of the Varsity Lacrosse tam as a freshman. And your mom makes me emotional when I think of her working all week and at tremendously trying job, driving Ryan to Lacrosse practices daily, fixing dinner and all the other domestics wonder jobs that are somehow associated with motherhood, saying more prayers to saints I have never even heard of, spending countless hours thinking of new and creative ways to make chicken broth taste like something other chicken broth, and she does all of the above with a giant smile on her face. She truly epitomizes the glass half-full notion. We have learned how important extended family and friends are, whether it's making stew, ringing Christmas bells, cutting your hair, countless hours of time putting music on an Ipod, driving down to tucson just to play cards with you, and most importantly, the incredible testament of your influence on people by the amount of entries on this blog.

Thank-you for allowing us the opportunity to be a part of your journey. I am convinced we are all better people because of it.

I love you so very much.

Unknown said...

Moke -- I echo everyone's comments, but would add that while you do and will always have the support of the family, and what a great and special familiy it is, YOU were the one who fought tough and perservered. That, my cousin and fellow cardardie, is something to be proud of. Congrats!

.tn. said...

good job steve! glad you made it through and had a lot of support throughout the ordeal. see you in a bit

Anonymous said...

What a wonderful day!

You made it Steven, cant wait to see you soon, sans hair ;)

Love to you and everyone,
Ellen/Pat

Anonymous said...

Hi Baby,

I just got home from work and headed directly to my computer to see what's going with you....I thought of you throughout the day, but with more joy than days before. I know that the healing process will take some time, but from what I learned from you, it couldn't be as bad as what you have already endured.

I miss you so much, and can't wait to see you. Maybe one day, before the baby's born, I can hijack my kids, with Moochie and we can play some pincole.

Enjoy this time, as much as you can....

Love you forever!
Aunt Lynnie

Steve said...

Jean again, too uncomputer savvy to take time to figure out how to post in my own name. Steven, I've been waiting for this to be over knowing you were moving forward with the life you deserve to live to the fullest. Hoping the lessons we learn will make us all better human beings in our kindness and charity toward others. This Bob Dylan song has been my prayer for you (and for all my children). And as I have prayed it I have thought of all the mom's and dad's we know who have contributed to cheering you on and how we all want the same things for our kids no matter what they are going through. I have thought of those we know who cling to the memories of children they have lost and the grief they will always carry with them. I will continue to pray these words and hope they are true for you and all who read this: Forever Young
May God bless and keep you always,
May your wishes all come true,
May you always do for others
And let others do for you.
May you build a ladder to the stars
And climb on every rung,
May you stay forever young,
Forever young, forever young,
May you stay forever young.

May you grow up to be righteous,
May you grow up to be true,
May you always know the truth
And see the lights surrounding you.
May you always be courageous,
Stand upright and be strong,
May you stay forever young,
Forever young, forever young,
May you stay forever young.

May your hands always be busy,
May your feet always be swift,
May you have a strong foundation
When the winds of changes shift.
May your heart always be joyful,
May your song always be sung,
May you stay forever young,
Forever young, forever young,
May you stay forever young.
Love, Mudgie

Anonymous said...

Hey Baby,

Just thought I write a quick note to tell you that I am thinking about you and tell you how much I love you.

Moochie was over for dinner tonight and she wants to plan a visit for this week. I can't wait to see you, Jen and Tiny. As soon as we firm up our plans, I'll let you know.....in the meantine, just remember, I'll love you for always!

Good night baby doll.....

Aunt Lynnie

Rye Bread said...

I am glad that you are feeling better today, seems like the road to recovery has started. I hope that you enjoy the baseball game tomorrow. I love you!

Aunt Mary said...

Hey Sweetie,

I have thought of you all day. While I know you still feel like you have been hit by a bus, you must be rejoicing at the thought that from this point on,you begin the healing process. I have a feeling that it may go smoother than you had originally thought.

I am beginning a Kairos tommorrow. Please know that you will be ever present in my thoughts up there. Without sounding a little too kum-bye-ya-ish, being up in Oak Creek is very spitirtual for me. I have so many fond memories of Oak Creek that stem from my childhood and continue even now, with my sweet little brophy boys who never fail to surprise me. I find them both enlightening and frightening at the same time. Rest assured, I will take time to reflect on the past couple months and remind God that he needs to continue to keep you in the palm of his hands......Whoa.....maybe I should consider some liturgical dancing after reading this post....

Love you soooo much!!

Mudge said...

TT, the best part of my weekend was seeing your smile and hearing a chuckle and a few words come out of your mouth before I left Sunday night. Hiking Sabino Canyon with you this weekend I realized you still have more strength and determination than the average person. Being away from you now is like hating to leave a baby with a sitter in case you miss their firsts: smile, rolling over, steps, or words. Each day I wonder if you're feeling any better, are you able to swallow, are your spirits high or low, is the mucous any less...you are constantly in my thoughts. Today a girl was in my office crying because her dad has throat cancer and she is afraid. She didn't know about you. She told me her aunt sent her a card with a prayer from "some pope or pio guy" I said, "Padre Pio?", and she lit up and said yes. So I told her he was a very powerful man and cured people when he was alive so he would be a very powerful saint to pray to. Then I told her a little about you. I didn't think she really heard me because she was crying so hard and putting her head down, but when she finally got up to leave she told me, "I'll pray for your son." It was so sweet, so I told her I would pray for her dad too. Then she hugged me tight for a long time in the hallway with other kids walking by and it seemed like she didn't even notice. It was a moment of Grace. I love you T. Mudge

andreameows said...

Steve, I do not have words for what I am feeling for you right now. I just want you to know you have been in my thoughts and I am grateful and inspired. You are in my thoughts and heart, keep going....
Andrea

unclejim said...

I sometimes think all men are somehow more related than just by the fact we share the same planet. Jean's story was so moving. It seems she was put in the line of that young girl by some force greater than us. God knew that little girl needed someone and that someone could not have been a better fit than Jean. It really was a great story.

I am so afraid that I have lost that small window of opportunity when I could have outrun you Steven. Then again, I hope its true because that would mean you are getting stronger everyday.

I think I still could beat you on the bike, for another week or two.

Keep getting better.

Laura said...

You are amazing!

I love you so much!